Opinion

Proof positive: life with a disability is life worth living

There’s a common and horrifying belief among many of us that unborn children with disabilities should be terminated. Many think that a different life or a life that needs extra care is not a life worth living. People look at a person with Down syndrome or a person in a wheelchair and feel pity. But what’s truly pitiful is that, despite our attempts to dissuade bullying and despite all of the human rights movements we form, we are still judging each other’s worth. We haven’t learned anything from the destructive ways of Nazism or the rise of the Civil Rights Movement. We are still willing to condemn a child to death for being less than our version of perfect. Doctors, who have pledged to do no harm, are still pressuring parents to abort their disabled babies. We have forgotten that we are all a part of the human family. Luckily, there are plenty of differently-abled people living happy lives and reminding us that they aren’t so different after all.

Annie Clark

Born without hands, not only has seven-year-old Annie learned to dress herself, swim, type, and paint her toenails, but she has also won a national award for handwriting. According to the Pittsburgh Post-Gazette, Annie was awarded best handwriting in her first grade class, after which her writing sample was sent to the Zaner-Bloser’s national handwriting competition. That company awarded Annie with the Nicholas Maxim Special Award for Excellent Penmanship, which came along with a trophy and $1,000 prize. Adopted as a toddler, Annie is a determined little girl who proves that her life is limitless.

Nick Vujicic

Nick Vujicic

Nick’s parents were shocked when their son was born without arms or legs. They wondered what kind of life he would have, and Nick often struggled with that himself. But today, Nick runs the non-profit Life Without Limbs, traveling the world to inspire us all to be closer to God and to live our lives with gratitude and joy. He is married. He surfs. He works to end bullying and to inspire people to overcome their challenges. He lives a normal but extraordinary life, proving that the only thing that can hold us back is our own fear.

Chase Britton

Chase’s story, as told to AOL News, is one that would cause many of us to cry. His twin died during their mother’s pregnancy, and Chase was born premature and legally blind. Then at age 3, his doctors discovered that he was missing parts of his brain: the cerebellum, the area that controls motor skills, balance, and emotions, as well as his pons, the area of the brain stem that controls sleeping and breathing. Yet despite this poor prognosis and his many challenges, Chase is walking, talking, using scissors, and riding a bike. The doctors are dumbfounded. His parents feel blessed. His mother Heather told AOL News, “Don’t give up on your kids. Don’t believe everything the doctors say. Don’t get me wrong. I love doctors. But they can be wrong.” She goes on to say, “People could view this as a tragic story. But that depends on how you look at life. You can be angry or you can appreciate what you have been given.”

Ryan Langston

The world of modeling is usually criticized for projecting unrealistic images of what women and men should look like, whether because models are too thin or actresses’ photos have been altered. But this year, young Ryan inspired the special needs community and the world when he posed alongside other children his age for Target and Nordstrom. Ryan has Down syndrome. In the United States, 90% of children with Down syndrome are aborted. Ryan is helping to shed light on this troubling statistic and the unfortunate, unrealistic belief that Down syndrome sentences people to a life of misery and suffering. On the pages of those catalogs and at home with his twin brother, Ryan is just like any other 6-year-old boy with a joyful, successful life ahead of him.

Colton McKinstry

Doctors told Colton’s parents seven times to abort him. They warned them that he would likely die before birth. He didn’t. They said he wouldn’t survive labor and delivery. He did. They said he would be a “vegetable” who couldn’t recognize his own mother and would never smile or laugh. He is proving them wrong. Colton was born with hydrocephalus, leaving the middle part of his brain undeveloped and full of fluid. Yet after surviving surgery to place a shunt in his brain, Colton is a happy eight-month-old boy who not only laughs at his big sisters, but is also meeting his milestones with a bit of help from occupational and physical therapists. He is shocking all of his doctors, to the great joy of his parents.

Ronnie Sharpe

Ronnie Sharpe

Diagnosed as a baby with cystic fibrosis (CF), Ronnie defied the odds by surviving to adulthood. But not only has he survived – he is now a husband and father, as well as the founder of Cystic Life, an online community for people with CF who cannot socialize with each other in person due to health concerns. Between and during numerous hospital stays and daily therapies in the battle to keep his lung function high, Ronnie works diligently to raise awareness of CF, and he celebrates life every day, as is apparent on his blog RunSickBoyRun.com. Yet, according to Kaiser Permanente, over 90% of its patients in Northern California alone terminate babies with CF. Ronnie is living proof that life with CF is very much worth living.

When we say it’s okay or even good to abort a baby because she has a disability, we are telling each of these people that their lives are meaningless. We are telling them that to have an “imperfection” is unacceptable. We are teaching our own children that people with disabilities are unworthy of love and life. It isn’t sympathetic to kill someone because she has a genetic condition or a disability. It is the coward’s way out. It is evil disguised as an apparent good, and it is unacceptable.

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  • Mitchbehna

    I just happened to look Vugicic up a week ago. Such an inspiration.

  • Jordan Elizabeth

    I remember my mom pointing out the Target ad with Ryan Langston and being really excited about it :)

  • http://www.facebook.com/profile.php?id=100001171348081 Alyssa Lauer

    My freshmen year of high school I was lucky enough for Nick to come and speak at my school. He told a story of a young girl he was knew who was pregnant. The father told her he would leave her if she would not abort the child. She decided she did not want to be without her love, so she aborted, but there was a complication during the abortion. Because of this she was no longer able to have children. When she told the father, he left her because he had always wanted to be with someone who could have his children. Nick was a wonderful speaker, and I know he truly values life. Sadly, I overheard a fellow student, who happened to be atheist and very liberal, complaining afterwards because of his mention of abortion, and the fact that the only thing he kept with him for his speech was a Bible. Maybe if he would have listened to what Nick had to say instead of blinding disagreeing, he could have realized the truth. Some people are just too blind, though. God bless you, Nick, and the others on this page, and everyone out there in the world who works for the truth to be seen!

    • Gigigodwin

      Without a doubt, Nick is the most inspirational person I’ve ever known. God bless Nick & his ministry.  

  • http://www.facebook.com/profile.php?id=1135204691 Steve Spitler

    It’s all fine, well and good that THESE particular people are doing okay, but you have to remember THEY ARE EXCEPTIONS.  Most people born this way, are a HUGE BURDEN on the families that try to raise them, the system if they are abandoned and society as a whole. For a long long time I was completely against abortion but I realize that not everyone should be here, certainly those that are not equipped to live a normal life in a normal society. I still think abortion as birth control is atrocious.  Is it be better to allow suffering, pain, agony on not only the cared for but the care givers or to end it before it starts?

    • Leah Smith

      Where would you draw the line?  And, who would tell us where the line should be?  

      • http://www.facebook.com/profile.php?id=1135204691 Steve Spitler

        Me? I’d draw the line at the Dr saying “there seems to be a problem here” You can draw it where ever you like. And who should tell us? Us. We set out own lines. Not the government. I still think PP should not be funded by tax dollars. I still believe that if you are under 18 parents need to give permission. Doesn’t make a bit of sense that the local high school can’t give your kid aspirin for a headache but can help get an abortion.

    • http://www.facebook.com/profile.php?id=5229697 Jessica Pronovost

      You discount the possibility that there is a reason behind our suffering. No matter what suffering we all experience in life, there is a reason behind it. Suffering takes us outside of who we are and what we can do and lets us catch a glimpse of something more. We don’t always have the opportunity to see it in the moment but there is always a reason. More productive people today have had a rough beginning than those who have been given an easy life. The stories that inspire us and make us want to change aren’t those of people living ordinary lives, but those who have been handed suffering on a plate and with the help of those around them have not only turned their life upside down but have helped others do the same along the way.

      • http://www.facebook.com/profile.php?id=1135204691 Steve Spitler

        And you discount the possibility that there is no reason and people shouldn’t be allowed to suffer.

    • Lena

      What is “normal?” No one is perfect, we were all born with flaws. And that never, ever deserves a death sentence. We do not want to be like Hitler.

      • http://www.facebook.com/profile.php?id=1135204691 Steve Spitler

        Normal is NOT missing limbs, normal is NOT messed up chromosomes, normal is NOT anything that is considered a birth DEFECT.

        • PointeforJesus

          Seemingly odd question, Steve: are you lactose intolerant? If not, then by your own definition, you aren’t normal and perhaps should have been aborted. The ability to digest lactose is a mutation.

    • pofalici

      YOU say they are a huge burden on their families. These cases are not exceptions, they are exceptional people. Many who are not handicaped are not exceptional at all. In fact, many are worse than useless. I know many families who’s unhandicaped children are a burden to raise. These wonderful people inspire us “normal” ones to get a clue and maybe be useful as well.
        

    • PointeforJesus

      “Most people born this way are a HUGE BURDEN on the families that try to raise them.”
      Interesting fact. May I please have the statistics you found in your research?

  • Leah Smith

    Oh thank you sooooo much for writing this. It’s so incredibly important for people to read and remember this!  I’ll pass it on to my pro choice friends.  ”When we say it’s okay or even good to abort a baby because she has a disability, we are telling each of these people that their lives are meaningless.”.  Amen!   You’re so right, it is totally unacceptable.

  • http://www.facebook.com/profile.php?id=5229697 Jessica Pronovost

    Also if we were to allow the discontinuation of human life just simply based upon probable suffering, we should be allowed to kill at will because everyone is, has, and will experience suffering of some sort, whether it’s as simple as a migraine, or as extensive as a head on collision or losing your entire family in a house fire. Suffering is just a part of life that must be overcome, not feared, not run away from.

    • http://www.facebook.com/profile.php?id=1135204691 Steve Spitler

      There is a difference in a traumatic life event and forcing a living being to look after a crippled, incapacitated, burden for the rest of their life. If my missus and I get pregnant with a Down’s child, would YOU lift our burden and ease OUR suffering by helping pay for and rasie that child? Forever? 

      • http://twitter.com/CalFreiburger Calvin Freiburger

        So it’s permissible for Jack to kill Jill as long as Jim isn’t willing to take care of Jill. Liberal morality, everyone!

        • http://www.facebook.com/profile.php?id=1135204691 Steve Spitler

          I’m no liberal. I’m willing to bet I am more Conservative than most people here and I mean Conservative, not Republican. There IS a difference. And get it right. I said nothing about killing a person, it should be permissible to terminate a pregnancy where the fetus has major problems. Everyone here that gets all doe-eyed over babies needs to put their time and money where their mouths are. If you don’t want people to have abortions, start paying for the pregnancies, medical costs, schooling and everything involved with the unwanted children. People shouldn’t be forced, which is what this all amounts to, to have that baby. If they want to, and they are willing to take on that task, more power to them. But they shouldn’t do it on the taxpayer dime and they shouldn’t do it just because you don’t want them to abort. And I will reiterate for those that don’t get it, I find abortion as birth control repugnant.

          • http://twitter.com/CalFreiburger Calvin Freiburger

            “And get it right. I said nothing about killing a person, it should be
            permissible to terminate a pregnancy where the fetus has major problems.”

            Um, killing a person is what “terminating a pregnancy” does. If you don’t want to be called a liberal, don’t use liberal talking points and fallacies.

          • http://www.facebook.com/profile.php?id=1135204691 Steve Spitler

            Even a liberal can be Right once and a while. And you’d do well to learn that, quickly.

            Would you force a woman to carry a child to term if there was a large possibility that the woman would die? What about a raped woman? Victim of incest? What would you say to women in these instances if you have abortions outlawed? Suck it up? Tough? Sure there is adoption, after the pregnancy, if the woman survives. But for those 40 weeks, they will feel the growing in them of a child that will kill them, was put there by a rapist or molester. What would you tell them, that it’s God’s will?

          • http://twitter.com/CalFreiburger Calvin Freiburger

            I think it’s telling that your response to being challenged is to change the subject.

          • http://www.facebook.com/profile.php?id=1135204691 Steve Spitler

            You haave yet to challenge me boy. I’ve never left the subject, abortion or termination of pregnancy. Afraid to answer?

          • http://twitter.com/CalFreiburger Calvin Freiburger

            No, I’m just afraid to waste time with someone who’s clumsily trying to cover his bait-and-switch with a tough-guy facade.

          • Musicaldaisy10

            Also, with the advances we’ve made scientifically & technologically, there really is no reason (in america) that pregnancy would endanger a mother’s life. It’s becoming less & less of a threat now, even in cases involving cancer.
            As for rape, less than 1% of abortions occur because of rape. That’s pretty small, & even then, I’ve read accounts of women who carried the baby & found closure in giving that child life, both through motherhood & adoption.

      • Musicaldaisy10

        Steve, no one forces anyone to take care of their own flesh & blood. People take care of them because they love them, they’re family, & because their lives do indeed matter. Not to make you out as a bad person or anything, but what you’re saying is that your own child, your own flesh & blood, that their life isn’t good enough, & you’re not going to sacrifice your own comfort for your own son or daughter’s needs. Do you see how selfish that sounds? Especially as a parent?
        And if we’re to kill anyone so they won’t suffer, what if I’m “normal” by your definition, & one day lose my arm or leg in a car accident? Should I be killed then & there? Even though I can rehabilitate & live happily without it, is my life now useless & invaluable simply because I suffered & may require extra care or help? Do you see the flaw in this logic?
        Also, I knew a young girl who was born with most of her fingers fused together. Should she have been aborted because her hands weren’t normal? We could make an unending list of things that cause us to suffer, but are any of them a good excuse to end a life?

  • Lena

    Thank you Nancy, this is beautiful! Very life-affirming.

    There is also Jessica Cox, who became the first armless pilot, the first to scuba dive, and the first to earn two black belts in Taekwondo. Such an inspiration :)

  • Kristen M

    The story of Colton reminds me of the stories my parents tell of my older brother. They weren’t ever encouraged to abort but they were told most of the same stuff that Colton’s parents were. My brother was born prematurely with hydrocephalus as well. The doctors first told my parents that he wouldn’t live. When my brother defide the doctors and did live, they said that he would be intellectually disabled. However, my brother grew up to be highly intellegent. He even taught himself how to read at 3 (after my mother taught him the letters) and he hasn’t stopped reading since. He is now in his 30s and has no issues related to the hydrocephalus he was born with. God worked a miracle in my brother’s life and despite the fact that he’s annoying sometimes I am blessed to have him. 
     

  • Karen Applebey

    Their stories are so inspirational!! It  makes you realize that God has a purpose for all his children. I feel ashamed for sometimes feeling sorry for myself!!! when i read these stories they inspire me!!! God bless all of you Karen  

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